Cerebral Palsy Register
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Cerebral Palsy Register

MALTA CEREBRAL PALSY REGISTER



Support World Cerebral Palsy Day​ (click here​)


   
Contact Persons: Dr Miriam Gatt​  

                            Dr Stephen Attard

 

 
CEREBRAL PALSY

Cerebral Palsy (CP) occurs in around 1.5 to 2 per 1000 live births. It is the commonest disabling condition in childhood. CP constitutes a number of different motor conditions, all of which can be caused by a number of relatively common and other rarer conditions.


AIMS

The major aims and objectives of this register include:
  • To collect data and keep a comprehensive Register of all cases of CP diagnosed on the islands of Malta and Gozo.
  • To provide surveillance on the occurrence of CP.
  • To facilitate statistical and epidemiological research in the field.
  • To issue reports and respond to queries from interested individuals including health professionals, policy makers, researchers, students and the media.
  • To maintain active collaboration with international organisations and networks working on CP.
  • Knowledge of the epidemiology of CP is expected to help guide the management of affected children in a number of ways including: quality improvement of existing diagnostic investigations, rehabilitation, medical, surgical and rehabilitative (including psychological) treatments.
  • New modalities of treatment may also be introduced following evidence based data.

 
BACKGROUND

The lack of an official nationwide register on Cerebral Palsy has been felt since the early 2000s. In 2016 the Department of Paediatric and Adolescent Health and Directorate for Health Information and Research worked together to address this gap; signing a Memorandum of Understanding with the aim of collaborating to develop a national population based CP Register. This Register is supported by the Chief Medical Officer and respects data protection legislation at all times.

This Register was accepted as a member of the Surveillance of Cerebral Palsy in Europe (SCPE) and follows the guidelines of this European institution on the data collection and analysis of CP.


COVERAGE

This Register is population based covering the islands of Malta and Gozo and includes all cases of CP reported to the Register by health professionals.


REPORTING OF CASES

Diagnosed cases of CP can be reported and notified through our online report form. Doctors and health professionals working with individuals with Cerebral Palsy are encouraged to notify cases under their care.


INTERNATIONAL RELATIONS

The Malta CP Register is an active member of the European Surveillance of Cerebral Palsy​. The aim of the SCPE network is to disseminate knowledge about cerebral palsy through epidemiological data, to develop best practice in monitoring trends in CP, and to raise standards of care for children with cerebral palsy.