NATIONAL ORGAN TRANSPLANT REGISTRY
Contact Person: Ms Lorinda Camilleri
AIMS
- To collect data and keep a register of all organs harvested
on the islands of Malta and Gozo, whether transplanted locally or
abroad.
- To provide data which may be required for epidemiological and research
studies.
- To issue regular statistics on organ transplantation on the Maltese Islands
and provide physicians and the general public with information they may need,
always respecting strict confidentiality.
BACKGROUND
The National Organ Transplant Register has received
regular notifications since 1999. Data prior to this has been collected
retrospectively but is considered to be incomplete since no regular data
collection had been in place at the time.
COVERAGE
The register is population based and registers
all organs harvested on the islands of Malta and Gozo, whether transplanted
locally or taken abroad.
DATA COLLECTION AND SOURCES OF INFORMATION
Data for all organs harvested in Malta and Gozo is collected.
The register also keeps data regarding the organ donors and transplant
recipients. The latter information is only available for those organs
transplanted locally.
Data collection occurs only on a passive basis.
The register relies solely on notifications of transplants sent to the registry.
Any transplants not notified by the competent persons are not included in the
register.
The registry keeps named records in order
to:
- avoid duplicate
registration;
- allow the follow up of
cases until date of death; and
- to be
in a position to trace the cases in order to conduct prospective or
retrospective studies.
Patient Hospital Files are reviewed whenever possible to
validate and ensure accuracy of registrations. Strict confidentiality is
respected at all times.
NOTIFICATIONS FORMS
SUMMARY STATISTICS
CONFIDENTIALITY STATEMENT
The National Organ Transplant Registry collects and processes
personal information regarding organ transplants for statistical and research
purposes and in the interests of public health. All data is collected and
processed in accordance to the Data Protection Act (Malta, 2001). The Registry
does not disclose identifiable data unless the law permits it. All individuals
are entitled to know what information the Registry holds about themselves.